The ‘Otherness’ We Experience as a Family With Kids Who Have a Rare Disease

Lani discusses feeling like her family is treated like the “other” and the exception during the pandemic because her kids have a rare disease.

Original post here: The ‘Otherness’ We Experience as a Family With Kids Who Have a Rare Disease

Original post here: The ‘Otherness’ We Experience as a Family With Kids Who Have a Rare Disease